Working towards a cure for Glanzmann's Thrombasthenia, & providing hope & help for the present.

Glanzmann's Research Foundation is a dedicated platform providing comprehensive information and support to patients, families, and healthcare providers affected by the rare inherited blood clotting disorder, Glanzmann's Thrombasthenia (GT).

As a 501(c)(3) non-profit, our primary goal is to fund research aimed at finding a cure for Glanzmann's Thrombasthenia. We strive to create a community where individuals affected by GT can find resources, connect with others, and contribute to the fight against this rare condition.

Faces of GT

Our Faces of GT section showcases the stories of individuals living with Glanzmann's Thrombasthenia, offering a glimpse into their lives and experiences. We believe that sharing these stories can help foster understanding and empathy for those affected by GT.

A white person icon on a green background representing glanzmann's thrombasthenia.

Faces of GT

Michela Golia

Hi, I’m a 51-year-old woman with Glanzmann’s thrombasthenia. I was diagnosed at 6, after the death of my older brother, who had the same condition as me but was mistaken for hemophilia. Quite quiet childhood with various hematomas throughout the body. At 13, I started hospitalization due to bleeding from menstruation. Endless transfusions and tranex…

A group of veterinarians in front of a truck, highlighting glanzmann's thrombasthenia.

Faces of GT

Emily

Hello! I am Emily, a 25-year-old with Glanzmann’s Thrombasthenia. My journey with GT started when I was only a few hours old. I developed purple marks (later found to be bruises) all over my body. The doctors and nurses referred to me as the “blueberry muffin baby”. After numerous tests, including a biopsy of one…

Two women standing in front of a sign that says forever sisters, one of whom has Glanzmann's thrombasthenia.

Faces of GT

Jyll

Hi, my name is Jyll and I was born March 24, 1973 in Toledo, Ohio. I was so glad to have found this website through Kaytee, one of my GT sisters because I’m not alone anymore! When I was born my umbilical cord would not stop bleeding. After three weeks it was cauterized. I was…

In our News section, we keep you updated with the latest developments in Glanzmann's Thrombasthenia research and treatment. Stay informed about the strides we're making in our mission to cure GT.

Physical Activity and Glanzmann’s Thrombasthenia

April 22, 2024

Glanzmann’s Thrombasthenia is a rare bleeding disorder characterized by the inability of blood to clot correctly due to a deficiency in platelet function. While managing this condition requires careful attention to various factors, including bleeding episodes and cardiovascular health, integrating physical activity into one’s lifestyle can improve overall well-being. Understanding Glanzmann’s Thrombasthenia Glanzmann’s Thrombasthenia poses…

Our Resources section is a comprehensive guide for anyone seeking information about Glanzmann's Thrombasthenia. From frequently asked questions to detailed information for doctors, we aim to provide a wealth of knowledge for those dealing with GT.